While the effects of COVID might not be as severe in most kids, doctors say there is a small group of kids who are not . Development and implementation of the pandemic intake questionnaire at the institute during the COVID-19 Pandemic. Odds ratios of significant predictors of pandemic intake Questionnaire responses. Doh Launches Covid-19 Hotlines 1555, 02-894-covid Methods: A Pandemic Intake questionnaire regarding COVID-19 related medical concerns of guardians of patients was distributed using Qualtrics. Get the inside scoop on jobs, salaries, top office locations, and CEO insights. These cookies do not store any personal information. This material may not be published, broadcast, rewritten, or redistributed. For medical advice, you can call healthdirect on 1800 022 222. Based on parent surveys, researchers believe thatone-third of parents will not send their children back to school for in-person instructionduring the ongoing pandemic. We aimed to systematically provide essential COVID-19 pandemic related information to clinicians before their visits with the family, and improve providers ability to deliver high quality care (8). The site is secure. (2021) 11(9):1139. doi: 10.3390/brainsci11091139, Keywords: pandemic (COVID-19), pediatrics - children, rehabilitation, SARS CoV 2, neurodevelomental disorders, Citation: Vedmurthy P, Murray C, Chen B, Asiedu A, Baranano K, Bay M, Belcher H, Burton V, Conlon C, Fine A, Gill R, Harris J, Hart K, Inches S, Johnson J, Lance E, Lipkin PH, Menon DU, McIntyre T, Rajaprakash M, Recio A, Singer HS, Smegal L, Smith-Hicks CL, Vernon H, Wilms Floet AM, Wong J, Yelin K, Leppert MLO, Zabel TA and Comi AM (2022) Pandemic intake questionnaire to improve quality, effectiveness, and efficiency of outpatient neurologic and developmental care at the Kennedy Krieger institute during the COVID-19 pandemic. Call centres and hotlines - Coronavirus COVID-19 In St. Louis,45 percent of children with disabilitieshave notreturnedto in-person instructionat the countys special education schools. CARD, CDL and the Tourette's clinic were noted as less medically complicated. Impact of COVID-19 pandemic on mental health in the general population: a systematic review. Coronavirus (COVID-19) enquiries. Kennedy Krieger has one of the only clinics in the country that treats children and young adults dealing with what's known as "long COVID," when some suffer from symptoms long after the initial . There was a 0.998 cumulative decrease in reports of worsening behavior with each increase in age by month (Table2). The central helpline number: 011-23978046. It is designed for people with disabilities who are 12 years of age and older, as well as their families and caregivers. They face significant disruptions to home and school routines, that can cause further declines in health outcomes, and limitations in accessing necessary healthcare and educational services (2, 3), which can further exacerbate their neurodevelopmental impairments. Accessibility Chi-square analysis determined if responses differed between those in more or less medically complicated clinics. Downvote. Prvu Bettger J, Resnik LJ. Children's Mercy Kansas City, United States. Clinic type was a significant predictor; age, sex, and race were not. There was a 0.993 cumulative decrease in reports of difficulty accessing therapies with each increase in age by month. Call the national coronavirus helpline on 1800 020 080 (24 hours a day, 7 days a week).. Healthdirect. Asbury K, Fox L, Deniz E, Code A, Toseeb U. The raw data supporting the conclusions of this article will be made available by the authors, without undue reservation. Contact Us - COVID-19 Chloe is now getting treatment from doctors at Kennedy Krieger, at one of the . The COVID Care@Home team includes nurses who are available to provide advice on symptom management, and assist patients with engagement . J Pediatr. Background: The COVID-19 pandemic uniquely affects patients with neurologic and developmental disabilities at the Kennedy Krieger Institute. A full factorial binary logistic regression (with interaction) determined whether responses differed between group (more vs. less medically complicated) and time of survey completion (early vs. later pandemic), and identified which factors drove statistical significant associations. Call the Hotline: 1-888-364-3065 . Guardians from the Neurogenetics (38%), Other clinics (27%), and the Spinal Cord clinic (72%) were 2.6312.92 times more likely to report difficulty accessing therapies as compared to 17% (n=206) of those from CDL. They were analyzed within Excel to determine the frequency of answers. The Kennedy Krieger Institute provides outpatient medical services and care for children and adolescents with disorders involving the brain, spinal cord and musculoskeletal systems. Adolescent and Young Adult ME/CFS After Confirmed or Probable COVID-19 We successfully implemented a pre-visit Pandemic Intake questionnaire to quickly and systematically inform provider awareness of COVID-19 related patient concerns; the majority of program directors reported that this information helped them provide optimal care. BALTIMORE Johns Hopkins Medicine and the Kennedy Krieger Institute have partnered together to host a drive-thru COVID-19 vaccination clinic. This study reports worsened sleep in patients at CARD; previous research found patients with ADHD and ASD to report high rates of delays in bedtime, decreased sleep duration and increased sleep disorders (18). Brain Sci. This quality improvement project successfully implemented a pre-visit questionnaire to quickly assess areas of impact of COVID-19 on patients with neurodevelopmental disorders. Contact Us. 104. Written informed consent from the participants legal guardian/next of kin was not required to participate in this study in accordance with the national legislation and the institutional requirements. Phone: 13 42 68 Providers addressed this concern by making referrals to other clinics. Patients with spinal cord injuries (10), sickle cell disease (11), developmental (12), and neurological (8) conditions are reported to be at increased risk of COVID-19 infection. COVID-19 Resources | Johns Hopkins Children's Center If you are in crisis and need immediate help, please call: 988. All claims expressed in this article are solely those of the authors and do not necessarily represent those of their affiliated organizations, or those of the publisher, the editors and the reviewers. Fully vaccinated is two shots of Pfizer or Moderna or one shot of the Johnson & Johnson COVID-19 vaccine. Coronavirus (COVID-19): guidance and support - GOV.UK Upvote. . For the patients, families, students and staff of Kennedy Krieger Institute. The complex, inter-related factors, unique to patients with neurodevelopmental disorders influence the impact of the COVID-19 pandemic. 12. Support and resources. To increase cell size for statistical analyses, the Epigenetics, Metabolism and Sickle Cell clinics were combined to the category of Other, and American Indian/Alaska Native, Native Hawaiian, Other, Other Pacific Islander, and Hispanic races and ethnicities were also grouped together. 111 online will not give you a diagnosis, but we will direct you to the best place to get help for your symptoms. doi: 10.1136/bmjopen-2020-045343, 3. Get browser notifications for breaking news, live events, and exclusive reporting. Impact of COVID-19 pandemic on utilisation of healthcare services: a systematic review. This questionnaire was created on the institute's Qualtrics account and distributed via web-link to patients prior to their in-person or telehealth clinic visits. Results: Analysis included responses from 1643 guardians of pediatric patients (mean age 9.5 years, range 021.6 years). Mutluer T, Doenyas C, Aslan Genc H. Behavioral implications of the COVID-19 process for autism Spectrum disorder, and Individuals comprehension of and reactions to the pandemic conditions. An official website of the United States government. Out of all respondents, 2.9% reported that their child had asthma/other lung disease and 0.2% reported their child having heart disease at the time of completing the questionnaire. The vaccination drive thru is scheduled for this Sunday, May 23at the outpatient parking garage of the Kennedy Krieger Institute. Patients with neurodevelopmental disorders are less able to tolerate mask wearing or observe social distancing requirements, exacerbating the risk of becoming infected with COVID-19 and the stress upon them and their families. Uttarakhand. kennedy krieger institute (baltimore, md) This page shows COVID-19 capacity for hospitals in Anne Arundel County, Baltimore County and Baltimore city in Maryland The colored icons on the map below indicate the hospital's bed occupancy, but do not represent local hospitals surge plans to accommodate more patients. 6 a.m. to 6 p.m. Tuesday through Sunday, and observed state holidays. There was a 1.006 cumulative increase in reports of worsened appetite with increase in age by month (Table2). The Supplementary Material for this article can be found online at: https://www.frontiersin.org/articles/10.3389/fresc.2022.934558/full#supplementary-material, 1. Domestic Violence: Clinic type was a significant predictor, but sex, age, and race were not (80.5% correctly classified, 2 (14, N=1,638)=158.6, p<0.001). Here are . There was a 1.003 cumulative increase of reports in worsened mood with each increase in age by month (p=0.01). CA Notify Hotline. Robert F. Kennedy Jr. has risen to become a major figure in the vaccine resistance movement. How is COVID-19 affecting the mental health of children with special educational needs and disabilities and their families? These patients are at increased risk of co-morbidities, increasing their risk of contracting COVID-19. There,researchersalready haveadministeredmore than 4,000rapid COVID-19 teststo students, teachers,and administrators in the six special education schools operated by the Special School District of St. Louis County. The implementation the Pandemic Intake survey facilitated the exchange of information and ideas, to benefit both patients and providers, and can be adapted to be used as a model for future pandemics at similar institutions. Most people can manage COVID-19 at home with support from their GP. Providers increased availability of in-person and virtual therapies and visits and made referrals for additional care to address this. Applications could be made either by calling 080060 10 11 or e-mail to grantenquiries@sassa.gov.za. Reports for difficulty in accessing surgeries decreased over time. Text size. Those from more medically complicated clinics were more likely to report inability to obtain therapies (32% vs. 18%; p<0.001) and inability to obtain surgeries (9% vs. 3%; p<0.001). The scale had low internal item inter-correlation, i.e., less than 0.70 (Cronbach's alpha =0.491), suggesting that the questionnaire items were sampling from a variety of clinical areas rather than assessing a single, unitary clinical domain (8, 9). Video below: Johns Hopkins studying so-called long COVID-19, symptoms. Free State: 051 410 8339. SASSA also has contact staff in every province to try and relief the congestion at the national call centre. The COVID-19 Hotline (800) 722-5725 can answer general COVID-19 and vaccine questions. One of those clinics is located in Maryland at the Kennedy Krieger Institute in east Baltimore. Live agents are available: Monday - Friday 8am to 5pm EST If you have an urgent medical need, please reach out to your healthcare provider. While the overall process of disseminating questionnaires was the same across programs, there were differences in the details of execution, like, in how many days before the clinic appointment the questionnaires were sent, which may have impacted participation. FOIA Xiong J, Lipsitz O, Nasri F, Lui LMW, Gill H, Phan L, et al. The Kennedy Krieger Institute provides outpatient medical services and care for children and adolescents with disorders involving the brain, spinal cord and musculoskeletal systems. Ethnicity and clinical outcomes in COVID-19: a systematic review and meta-analysis, Telerehabilitation in the age of COVID-19: an opportunity for learning health system research. Please call the clinic where you have the appointment (the number is on your appointment confirmation letter) to confirm if you should come in person, or if your appointment is through our telehealth system. The clinic helps patients through physical therapy and connects them with neurologists and physiologists to help them get better. The clinics noted as medically more complicated include: Neurogenetics, Neurology, Spinal Cord Injury, Sturge-Weber syndrome, Epigenetics, Metabolism and the Sickle Cell clinic. Coronavirus (COVID-19) pandemic | Australian Government Department of . Share by Facebook. The impact of the novel coronavirus disease 2019 on therapy service delivery for children with disabilities. A provider feedback survey was distributed to program directors to assess the effectiveness of this intervention. Kennedy Krieger Institute offers COVID-19 testing at its schools, Video Series: Off the Record with Sloane Brown, Off the Record with Sloane Brown: Jack Mitchell, Mitchell-Wiedefeld Funeral Home, YOUR CALIFORNIA PRIVACY RIGHTS/PRIVACY POLICY, Elliott Schreur | Md. sharing sensitive information, make sure youre on a federal Covid . Share by Email. This work was supported by funding provided by the Orokawa Foundation. Kennedy Says Kushner Virus Task Force Asked Him to Distort - Insider At that point, the Kennedy Krieger Institute was ready to give the go-ahead to welcoming thousands to its biggest fundraiser the Festival of Trees at the Maryland State Fairgrounds. The raw data supporting the conclusions of this article will be made available by the authors, without undue reservation. The CARD program director reported making more referrals to the crisis center and care coordination to increase resources and address these behavioral changes (17). AC, ML and TZ oversaw all aspects of the study. It is designed for people with disabilities who are 12 years of age and older, as well as their families and caregivers. Most directors (66.7%) made more referrals than before COVID-19 pandemic to address these concerns; including referrals to increase training children to tolerate masks, care coordination for resources, and to emergency department/ crisis center for behavioral concerns. By: Daily Record Staff Clinicians initiated the use of a questionnaire to ask guardians about COVID-19 related concerns prior to clinical visits. You can buy tests in shops but you . Kennedy Center COVID Safety Plan Many families around the world are currently staying at home in light of the COVID-19 outbreak. Regarding sleep, 11.7% (n=191) indicated the child's sleep worsened during the pandemic (Table3). Race and clinic type were dummy coded, with the largest groups (White children and the Center for Development and Learning, respectively), as the reference groups against which all other groups were compared. Second doses will be given on June 13. Comorbidities are risk factors for hospitalization and serious COVID-19 illness in children and adults with sickle cell disease, Risk factors for COVID-19 mortality among privately insured patients. To assess the utility of the Pandemic Intake questionnaire, a provider feedback survey was developed and sent to the seven program directors. An examination of theory and applications. The 33 item Pandemic Intake questionnaire collected information regarding the impact that COVID-19 had on their health, medication, and treatment (see Supplementary Appendix A for COVID-19 questionnaire). This was a cross-sectional study; further work is needed to understand implementation over time during the pandemic. (2020) 95(9):e1257e66. Murphy A, Pinkerton LM, Bruckner E, Risser HJ. The mean age was 9.5 years (range 021.6 years); 1,119 (68.1%) were males and 524 (31.9%) were female. Treats nurses unfairly . Neurology. Coronavirus - Michigan For general advice, you can call the National Coronavirus Helpline on 1800 020 080. Inclusion in an NLM database does not imply endorsement of, or agreement with, BackgroundThe COVID-19 pandemic uniquely affects patients with neurologic and developmental disabilities at the Kennedy Krieger Institute. doi: 10.1182/bloodadvances.2021004288. Telerehabilitation in the age of COVID-19: an opportunity for learning health system research. Those who need intensive therapy and rehabilitation may be recommended for inpatient admission to Kennedy Krieger. Race, age, and clinic type were significant predictors, but not sex. COVID-19 Testing. I interviewed at Kennedy Krieger Institute (Baltimore, MD) Interview. The Port Authority airports - Newark Liberty, LaGuardia, John F. Kennedy International, New York Stewart International and Teterboro were among the first and is the largest airport system to earn Health and Safety Accreditations from the world's leading airport trade organization, Airports Council International in November.. And we are thrilled to share, all five of the Port Authority . Clinic type was a significant predictor; guardians of CARD patients (22%) were 2.2 times more likely to report worsening sleep compared to CDL patients (12%). Due to the pandemic, many of these services transitioned to telerehabilitation (15). "We have a program that reaches out to school nursing so and provides that education so that there can be that bridge between parents kids and the school," said Rybczynski. This study suggests that patients from the Sturge-Weber clinic and patients that were Black had higher reports of worsening appetite. NHS England Contact us Clinic type was a significant predictor; age, sex, and race were not. On the bright side, Tuesday was her birthday and she had a rich array of celebratory alternatives. Received: 2 May 2022; Accepted: 18 August 2022;Published: 6 October 2022. J Autism Dev Disord. To register, click here. A total of 3,153 questionnaires were returned with a 33.6% response rate (N=1,643; see Table1). There was no difference in perceived increased risk of contracting COVID-19 across race, age and sex; this data contradicts previously reported information where Black and Asian individuals were at higher risk (14). Health Departments: Information on COVID-19 | CDC This de-identified database was stored on a secure Institute shared drive, and analyzed within IBM SPSS 27. This study has important limitations. Disruptions in their home and school routines, and restrictions accessing crucial healthcare services has had a significant impact.MethodsA Pandemic . Be 12+ years of age. However, these other data were not from children with neurodevelopmental disorders. PV drafted the manuscript. The Pandemic Intake questionnaire content was implemented beginning in April of 2020 until December 31, 2020 (Figure1), and included items specific to perceived risk of contracting COVID-19, changes in mood, behavior, sleep, appetite, and access to medical care. Evolving healthcare delivery in neurology during the coronavirus disease 2019 (COVID-19) pandemic. Text GOT5 to 741741. For non-urgent health advice: call your GP; visit a pharmacy We hypothesized that clinicians providing medical care during the pandemic would be assisted by this information. The Center for Development and Learning (CDL) sees patients diagnosed with cognitive impairments, anxiety, attention deficit hyperactivity disorder, learning disorders, language delays and social difficulties. The CARD program director reported making more referrals to the crisis center and care coordination to increase resources and address these behavioral changes (17). Festivals and Other Multi-Day Large Gatherings: COVID-19 Planning Toolkit for Health Departments. (2021) 5(13):271724. Providers reported that this process helped identify additional patient concerns specifically with social interactions and school services. *denotes statistical significance in table3. Please check the specific event notice in this section of the Web site to confirm the status of the meeting or event in which you are interested or registered to attend. This study suggests that patients from the Sturge-Weber clinic and patients that were Black had higher reports of worsening appetite. A significant main effect for time (early vs. later pandemic) was only observed in the ability to access surgeries over time (p=0.027); more respondents reported difficulty accessing surgeries between May and August (39.4%) than between September and December (13.6%). Kennedy Krieger Careers and Employment | Indeed.com AC, ML, TZ, PV, HB, CM, BC, EL, MR, DM, and PL contributed to conception and design of the study. Hopkins and Kennedy Krieger offer specialized COVID-19 - WMAR Latest coronavirus stories from WJZ Fortunately, Kennedy Krieger was already doing telehealth with military families for three years. Please note that the toll free number is a 24/7 number. doi: 10.1016/j.jad.2020.08.001, 17. Out of all respondents, 2.9% reported that their child had asthma/other lung disease and 0.2% reported their child having heart disease at the time of completing the questionnaire. 988 Suicide & Crisis Lifeline: If your life or someone else's is in imminent danger, please call 911. Here's how pediatric treatment for long COVID works Mucalo L, Brandow AM, Dasgupta M, Mason SF, Simpson PM, Singh A, et al. (2021) 11(3):e045343. Press Release / March 17, 2020. A Pandemic Intake questionnaire regarding COVID-19 related medical concerns of guardians of patients was distributed using Qualtrics. 1Department of Neurology, Kennedy Krieger Institute, Baltimore, MD, United States, 2Department of Neurology and Developmental Medicine, Kennedy Krieger Institute, Baltimore, MD, United States, 3Center for Development and Learning, Kennedy Krieger Institute, Baltimore, MD, United States, 4Department of Neurology, Johns Hopkins University School of Medicine, Baltimore, MD, United States, 5Department of Pediatrics, Johns Hopkins University School of Medicine, Baltimore, MD, United States, 6Center for Diversity in Public Health Leadership Training, Kennedy Krieger Institute, Baltimore, MD, United States, 7Office for Health Equity, Inclusion and Diversity, Kennedy Krieger Institute, Baltimore, MD, United States, 8Department of Neuropsychology, Kennedy Krieger Institute, Baltimore, MD, United States, 9Center for Autism and Related Disorders, Kennedy Krieger Institute, Baltimore, MD, United States, 10International Center for Spinal Cord Injury, Kennedy Krieger Institute, Baltimore, MD, United States, 11Department of Physical Medicine and Rehabilitation, Johns Hopkins University School of Medicine, Baltimore, MD, United States, 12Department of Genetic Medicine, Johns Hopkins University School of Medicine, Baltimore, MD, United States, 13Department of Psychiatry and Behavioral Sciences, Johns Hopkins University School of Medicine, Baltimore, MD, United States. This study has important limitations. and transmitted securely. Those from more medically complicated clinics were more likely to report inability to obtain therapies (32% vs. 18%; p<0.001) and inability to obtain surgeries (9% vs. 3%; p<0.001). Five out of six found the Pandemic Intake questionnaire helpful in their care of their patients. 134 COVID. Program directors made more appointments available and provided COVID-19 education to their patients. The statistical model was significant and correctly categorized 96% of patients, 2 (14, N=1,644)=43.7, p<0.001). In partnership with the Maryland State Department of Education andlocalschoolsystems, Kennedy Krieger School Programs serve nearly 500 public school students with disabilities from more than half of the school districts in Maryland. Most program directors reported improved patient care as a result. There was a 1.006 cumulative increase in reports of worsened appetite with increase in age by month (Table2). Reports of worsening in behavior during the pandemic was significantly different across race and ethnicity (p=0.002), type of clinic (p=0.014), and across age (p=0.047). CA Notify, Google and Apple's exposure notification system, alerts you if you were in close contact with someone who tests positive for COVID-19 while preserving your privacy. Odds ratios of significant predictors of pandemic intake Questionnaire responses. Funding comes fromtheNIH, which has awardedup to $33 million over two yearsforprojects at 10 institutions across eight statesas part ofitsSafe Return to School Diagnostic Testing Initiativeand through itsRapid Acceleration of Diagnostics Underserved Populations(RADx-UP)program. If you have any symptoms of "long COVID" or suspect anything, doctors at Kennedy Kreiger recommend reaching out to your child's pediatrician to see if they can start to help out your child and figure out if they might be experiencing "long COVID. Read the latest COVID-19 advice from our medical and public health experts. Race and clinic type were dummy coded, with the largest groups (White children and the Center for Development and Learning, respectively), as the reference groups against which all other groups were compared. West Bengal. This toolkit aims to help health departments prevent the spread of COVID-19 at multi-day events that are expected to draw large numbers of people. Clinic type was a significant predictor, but sex, age, and race were not (80.5% correctly classified, 2 (14, N=1,638)=158.6, p<0.001). Asbury K, Fox L, Deniz E, Code A, Toseeb U. Contact Us / COVID-19 Updates and Information - Minnesota Telemed J E Health. Telehealth/virtual visits are being offered by telephone or video. Black and African American patients (8%) were 1.9 times more likely to report worsened appetite than White respondents (4%). COVID-19 Testing | Department of Health Today, COVID-19 immunity protection is higher due to both vaccinations . MDH COVID-19 Public Hotline. Treatment at Kennedy Krieger is tailored to individual needs and involves a big team. No formal analysis to attempt to demonstrate these differences was done. Guardians of patients in more medically complicated clinics reported perceived increased risk of COVID-19 (p<0.001) and inability to obtain therapies (p<0.001) and surgeries (p<0.001). Krieger: A baffling mistake as Denver tries to stem the coronavirus Flight Tracker. This assessed whether the directors deemed the Pandemic Intake questionnaire helpful in the care of patients during the pandemic, and how they addressed COVID-related concerns. ; National Coronavirus (COVID19) Health Information Line - 1800 020 080 (this number operates 24/7 - if you require translating or interpreting services, call 13 14 50). Moynihan R, Sanders S, Michaleff ZA, Scott AM, Clark J, To EJ, et al. Program directors worked to address these concerns and there was a significant decrease in the number of respondents unable to access surgeries in the later months of the pandemic (September to December). Monday to Friday from 7am to 7pm (Sydney time). By clicking Accept, you consent to the use of ALL the cookies. (2021) 27(8):87480. These patients are at increased risk of co-morbidities, increasing their risk of contracting COVID-19. Families with infrequent access to email and non-English speaking families may have been less likely to participate. We exist to make sure it doesn't. To contact us, please call 1-800-344-4867 or complete the information below with as much detail as . Twenty-three percent (n=200) of guardians of White children indicated increased difficulty accessing therapies; Black and African American respondents (14%) were less likely to report difficulty accessing therapies. Supporting NSW during COVID-19. The Pandemic Intake questionnaire content was implemented beginning in April of 2020 until December 31, 2020 (Figure1), and included items specific to perceived risk of contracting COVID-19, changes in mood, behavior, sleep, appetite, and access to medical care. Responses were analyzed in relation to sex, age, race/ethnicity and clinic. As a library, NLM provides access to scientific literature. Comparison of more medically and less medically complicated clinics by pandemic questionnaire item. Thestudyispart of a larger project funded by the National Institutes of Health and overseen by Washington University School of Medicine in St. Louis.
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